Showing posts with label Health Care Book. Show all posts
Showing posts with label Health Care Book. Show all posts

Monday, November 12, 2012

Basic Tips on Working With Health Insurance

As many of you are aware The Malformation of Health Care book just became available on Amazon.com

 http://www.amazon.com/dp/B009V37CXU

In the book I detail several tips and tricks on how to navigate through our very complex and often times confusing health care system.

Today I want to take you inside the book and give you some basics of where to begin. Although some of these may seem obvious, they are often things that are overlooked when thrown into a stressful situation.



Checklist for Health-Care Rights and Service

Know your benefits: Get a printout from your insurer and know your deductible and out-of- pocket maximum. This way, you can track what you are responsible for. Be an educated consumer.

Ask for a case manager. This is a contact person within your insurance company who will know your case and be of real benefit to you if it is a complicated one. If your insurance company says you can't have a case manager, keep asking. Once they see all the claims coming in, most likely the company will change its mind.

Keep all of your insurance claims and bills/booklets, which you can usually do online. Keeping hard copies is probably a good idea, just in case your computer or backup drive dies.

Appoint an organized family member/friend to help you with all of this because it can be overwhelming␣especially if you're sick.

Reach out to a hospital social worker or to local nonprofit organizations (such as the Cancer Legal Resource Center, the Leukemia & Lymphoma Society, etc.) for ongoing help or support. They will know of good resources to help you if you're in trouble and can save you a lot of legwork.

Write down the name of anyone you speak with at your insurance company every time you contact your provider or your provider contacts you. Make sure you record the full name, date, and a detailed synopsis of the conversation.

Follow up!

If you are denied coverage, do not be afraid to appeal. Jump through all the hoops the insurance company asks of you, and document everything. If, at the end of the appeals process, you need an attorney, you will have something to give him or her.

Learn all you can about your condition. A lot of times, insurance company workers know little about your condition.

Check with your insurance company about its fertility policies. I include this advice because many young adults are diagnosed with serious illnesses that may require heavy medications and treatments. At the point of diagnosis, someone who is in their late teens may not be thinking about future plans for a family.

Have a relationship of open communication with your doctors, who can help to advocate for you. Know that there is creative coding for blood tests and other procedures you may require to facilitate your health. A test that might not be covered if coded in one particular way may pass muster with your insurance company if coded in another way.

Know your out-of-network benefits! Sometimes you may be referred to specialists who may not be in your insurance company's network␣ What is the percentage and how does your out-of- network benefit work with your deductible? Do any of the company's in -network doctors offer the same care as the out-of-network specialist to whom you have been referred? If not, most policies have provisions to cover out-of-network providers when no in-network doctor has the same capability.

Try to connect all of your doctors, so that each knows about your health in relation to the other physicians providing your care. If you can start a group dialogue among your doctors, your care will be better.



The Malformation of Health Care (Chapter 25) Copyright Erin Havel 2012



Thursday, November 1, 2012

Arteriovenous Malformations--AVMs


Arteriovenous Malformations are incredibly rare. They are among the list of conditions that most doctors don't know anything about. I was born with an AVM so I have been "medically fascinating" to most doctors I've come in contact with for the majority of my life.

This is good and bad.

The good is that I am relatively well spoken and I don't mind answering questions because I want more doctors to be aware of AVMs and what they do.

The bad is that there are still doctors who do not know how to treat these conditions but want to "try."

AVMs as I discuss in my book

(The Malformation of Health Care http://www.amazon.com/dp/B009V37CXU)

show up when a fetus is developing. In order for the gestational period to do what it is supposed to do, extra blood vessels show up to help grow the fetus. Usually these extra blood vessels do their job and then reabsorb in the body. However, for one percent of the population, those blood vessels think they still need to work so they become tangled and complex in a body that isn't supposed to house them long term.

I didn't find a doctor who knew how to treat my AVM until I was in my mid-twenties. Prior to then, I had a doctor who tried to "cut" my AVM out. This caused the AVM to grow more rapidly and out of control. I of course didn't know that at the time.

We tend to put faith into our doctors. The point of this blog is to encourage those dealing with an AVM or a child with an AVM to seek out a second opinion with a doctor who really understands and actively treats this condition.

My particular AVM should not have been cut into. Ethanol embolization treatments ended up being the way to go for me.


Here's an article on my doctor. He's one of the top docs a person with an AVM can see. I highly recommend Dr. Wayne Yakes as a second opinion if a person is questioning how to treat an AVM.


http://www.denverpost.com/popular/ci_19016626


I also highly recommend http://www.avmsurvivors.org/ if you want to talk to others dealing with the same condition.


Tuesday, October 16, 2012

On A Personal Note

Many of you know that there are four states (Washington, Maryland, Maine, and Minnesota) that have referendums or initiatives on the election ballot for November regarding equality. 

I usually keep this blog relatively specific to the public situations of health care. 

This year has been a real journey for me, however. 

I think I've been afraid to speak up about my sexuality and spirituality where backlash was potential, for a long time. Speaking about my health care journey at the Seattle Women's Choir Equality rallies and shows was easy because the supporters outnum
bered anyone who might disagree. 





Playing my music at GLBT affirming clubs and churches was never a problem, because everyone understood. This year particularly I've had to make some choices. I was conflicted about discussing sexuality and spirituality in my book about health care, even though both are huge parts of my life. I ultimately decided I needed to be honest and tell it all. I'm not ashamed to be a spiritual, faithful, believer in God. It's not a contradiction to love and believe. This year has been filled with baby steps that I didn't even realize I needed to take.

I thought I was "out" but I was only "safely out." Sometimes we have to speak up even when we're uncomfortable, even if we're scared--- because the only way things can be better for all people is when individuals come forward and tell the truth. Domestic Partnerships are separate and not equal in health care and many other ways. I know this, not from research, but from my own life and the lives of my friends.

These votes are not about my relationship. They are about all relationships. It's hard to know what life would be like to not have to fight for something like this. It's hard to know what it would feel like to not have groups dedicated to making sure others look at me as an abomination. It's hard to know what it would be like to meet someone, fall in love, and simply start planning a wedding with no legal barriers.

I'm less thinking about myself and more thinking about the children who come after me. Wouldn't it be nice if they never had to feel like their love was "less than." Wouldn't it be nice if everyone understood that God is love, and therefore real love, can never be "less than".





Link to my speech about Health Care and Referendum 74

http://www.youtube.com/watch?v=au-dXE7L6jQ

Link to something else that touches my heart:
http://www.youtube.com/watch?v=hlVBg7_08n0&feature=share

Friday, September 28, 2012

Saying Thank You!!!!

This is not your average blog post.

When you are passionate about a project and you have no idea how to accomplish it, you "get by with a little help from your friends," as the Beatles song says. 

I am so incredibly thankful to everyone who is helping me achieve my goals.

 Today however, I wanted to give a shout out to a very special group who helped me along the road these past couple months.

Special Thanks to:

Anna Koopman
Cordae Wright
Matt and Colleen Fuller
Laney Williams
Carol Zaura
Joshua Caniford
Sean McLaughlin
Dayna Sweders
Brigette Menoni Brankin
Linda Stanley
Bobbie C.De Baca
Mary Jo Braun
Jon Grigalunas
Katie Vadnais
Cathy
andrew rasmussen
Ruby Dee and the Snakehandlers
Mori Marchany
Amy Petersen
Aaron Cassara
Jill Sunderbruch
I-Wei Feng
Kate Wehr
Cheryl Jacobs
Shari Rosner
Lauri Boren
Rosemarie Coy
Nicole Simon-Burton
Tim Bruhn
Diana Roger
Beverly Lippe Terlep
Peg Pedersen
Betty DeBace
Jane Healy Brown
RIchard Hein
Khanh Doan
Leslie McQuade
Chad Jessup
Elaine A. THEUS
Anthony Elizondo
Justin Kreitzburg
Travis Mccauley
Kathleen Wake
Stephanie Nguyen
Joleen Schultz
Amber McGuire Lemar
Sue Kolasinski
Jessie Oettinger
Carrie Walsh Engberg
Thomas Dunham
Nicole DeBace-Rech
Justin Ozuna
Judith L. Miller
Ande Harwood
Martha Plummer
Jennie Gustafson
Katrina Lehto
Betsy Bruce
martha Luna
Anna Bevens
Tiki Naccarato
Jody Mayer
Daniel Rech
Jacinthe Assaad
Cassandra Brackmann
Elizabeth Granger
Carol Baker
Caro Horsfall
Duane Cuthrell
Darbie Whitman
Mary Jo Weaver Larson
Julia Colson
Matthew Browning
Claire Mouflard
Jenni Thibedeau Redman
Ruthy Lewis
Kathryn Doane
Jane Maranhas Kruse
Emily Sharp
 Nancy Balderas
Ric Firmino
Joel Duldulao Agpaoa
Peggy Gilmer
Nancy Bent
Mary Jelinek
Brian George Kerr
Selina Emlen
Kory Riley
Cheryl Cristello
Geneva Harwood
Eric Larson
Scott Welch
Bruce and Mary Claire Havel



















Tuesday, April 3, 2012

OMG! 2012 Stupid Cancer Young Adult Cancer Summit

I just returned from the OMG! 2012 Young Adult Cancer Summit put together by a group called Stupid Cancer (http://stupidcancer.com/). What an amazing experience! There were 550 registered young adults in all stages of cancer, as well as their caregivers there to listen to and discuss their daily reality.

Did you know 72,000 young adults are diagnosed with cancer every year? That number is staggering! Especially because it is seven times higher than all pediatric cancer diagnoses combined!

This summit was a way for young adults in all stages of cancer, as well as their care givers, to come together and learn about many topics as well as connect with eachother. Some of the topics discussed were self image, navigating careers, spirituality, self expression in a digital world, and the environment. The main message hit home for me was when the doctor says "you're cured, go home" that's not the end of the story. There are so many issues that don't go away just because someone might be in remission. I think many people forget this. The emotional scars last and so do the issues surrounding health insurance and self image (to name a couple).

One of my favorite connections of the weekend was with Johnny Imerman. Johnny is a young adult cancer survivor who started a group called Imerman Angels that matches people who are going through an illness with someone who has already gone through that very illness. Something they also do (which I found brilliant) is match family members and friends of people who are going through an illness to other family members and friends who have been through the journey. (http://www.imermanangels.org/)

I can't tell you how many people have come to me asking questions about all types of cancer and what they can do to help their family members going through treatment. I can give some basic suggestions, but when someone signs up with Imerman Angels they will be able to talk to a person with more specific suggestions. That's invaluable!

I honestly can not say enough about this conference. It is a fantastic and needed forum for young adults with cancer and their caregivers.

What about other illnesses? Other illnesses need support to.
I whole heartedly agree!
Check out http://www.nextstepnet.org/our-programs
This group works with young people with other life threatening illnesses such as HIV, and sickle cell disease.

Feel free to contact me if you need help researching support networks :)