Since last year's summit, all I could think about was going to Paris Casino and buying one of those Eiffel Tower strawberry daiquiris. The reason why, is because last year I was in no position to buy one of those daiquiris. It was my first year going to a conference that would connect me with other young adult cancer survivors, actually discuss my feelings as a young adult cancer survivor, and find resources I didn't know existed to help me as a young adult cancer survivor.
Last year's summit was amazing, but all encompassing for me. I had never been to Las Vegas, so I tried to cram way too many things into the weekend.
This year, I wasn't going to let that happen. I purposefully didn't schedule tickets for theatre productions or attractions. I didn't even focus on finding the "best buffet on the strip." I went all in for this summit. I decided to be fully present. That was the best decision I could have possibly made.
This year, I went to break out sessions I didn't think I wanted to go to last year. I went to cancer as chronic, survivors guilt, and the just for girls session. You see last year, I was in the middle of writing my book and completely focused on health care legislation and insurance issues regarding my journey. I published the book last year, so this year I was free to focus on my emotions surrounding my journey.
And boy did those emotions pop out of nowhere. I actually cried for the first time in a long time. I even caught myself with wobbly voice when I spoke to others.
This year was cathartic for me-- but it was also incredibly fun. If you're even remotely considering going to this conference next year-- Do It! You'll meet great people, you'll reconnect with yourself, and you'll learn so much that you didn't even realize you might have wanted to know.

This blog is intended to Create Positive Effective Change! Erin Havel is a Leukemia and AVM survivor, the author of The Malformation of Health Care book now available on Amazon http://www.amazon.com/dp/B009V37CXU and a Huffington Post Blogger see those postings here: http://www.huffingtonpost.com/erin-havel/
Showing posts with label Caregivers. Show all posts
Showing posts with label Caregivers. Show all posts
Tuesday, April 30, 2013
Tuesday, November 20, 2012
Thanksgiving for Non-Profit Groups!
Thanksgiving is this week and I'd like to take a moment to thank all of the advocacy groups out there dedicated to helping those struggling with health care.
Groups like
The Patient Advocate Foundation: http://www.patientadvocate.org/about.php?p=901
that has an online web-chat to answer specific questions a patient may have regarding insurance access, job retention, and medical debt.
P.S.I/ Patient Services Incorporated: https://www.patientservicesinc.org/how-we-help/default.aspx
that offers co-pay assistance to some patients on extremely expensive medications.
Sy's Fund: http://sysfund.org/
that encourages young adults battling cancer to also pursue their artistic/ life goals outside of their health battle.
There are so many wonderful organizations out there that I would be remiss to try and name them all. However, I am happy to update this post with additional references if you simply comment below with the name of the organization and what it focuses on.
Blessings to you and yours during this holiday season!
Groups like
The Patient Advocate Foundation: http://www.patientadvocate.org/about.php?p=901
that has an online web-chat to answer specific questions a patient may have regarding insurance access, job retention, and medical debt.
P.S.I/ Patient Services Incorporated: https://www.patientservicesinc.org/how-we-help/default.aspx
that offers co-pay assistance to some patients on extremely expensive medications.
Sy's Fund: http://sysfund.org/
that encourages young adults battling cancer to also pursue their artistic/ life goals outside of their health battle.
There are so many wonderful organizations out there that I would be remiss to try and name them all. However, I am happy to update this post with additional references if you simply comment below with the name of the organization and what it focuses on.
Blessings to you and yours during this holiday season!
Monday, November 12, 2012
Basic Tips on Working With Health Insurance
As many of you are aware The Malformation of Health Care book just became available on Amazon.com
http://www.amazon.com/dp/B009V37CXU
In the book I detail several tips and tricks on how to navigate through our very complex and often times confusing health care system.
Today I want to take you inside the book and give you some basics of where to begin. Although some of these may seem obvious, they are often things that are overlooked when thrown into a stressful situation.
Learn all you can about your condition. A lot of times, insurance company workers know little about your condition.
http://www.amazon.com/dp/B009V37CXU
In the book I detail several tips and tricks on how to navigate through our very complex and often times confusing health care system.
Today I want to take you inside the book and give you some basics of where to begin. Although some of these may seem obvious, they are often things that are overlooked when thrown into a stressful situation.
Checklist for Health-Care Rights and Service
Know your benefits: Get a printout from your insurer and know your deductible and out-of- pocket maximum. This way, you can track what you are responsible for. Be an educated consumer.
Ask for a case manager. This is a contact person within your insurance company who will know your case and be of real benefit to you if it is a complicated one. If your insurance company says you can't have a case manager, keep asking. Once they see all the claims coming in, most likely the company will change its mind.
Keep all of your insurance claims and bills/booklets, which you can usually do online. Keeping hard copies is probably a good idea, just in case your computer or backup drive dies.
Appoint an organized family member/friend to help you with all of this because it can be overwhelming␣especially if you're sick.
Reach out to a hospital social worker or to local nonprofit organizations (such as the Cancer Legal Resource Center, the Leukemia & Lymphoma Society, etc.) for ongoing help or support. They will know of good resources to help you if you're in trouble and can save you a lot of legwork.
Write down the name of anyone you speak with at your insurance company every time you contact your provider or your provider contacts you. Make sure you record the full name, date, and a detailed synopsis of the conversation.
Follow up!
If you are denied coverage, do not be afraid to appeal. Jump through all the hoops the insurance company asks of you, and document everything. If, at the end of the appeals process, you need an attorney, you will have something to give him or her.
Learn all you can about your condition. A lot of times, insurance company workers know little about your condition.
Check with your insurance company about its fertility policies. I include this advice because many young adults are diagnosed with serious illnesses that may require heavy medications and treatments. At the point of diagnosis, someone who is in their late teens may not be thinking about future plans for a family.
Have a relationship of open communication with your doctors, who can help to advocate for you. Know that there is creative coding for blood tests and other procedures you may require to facilitate your health. A test that might not be covered if coded in one particular way may pass muster with your insurance company if coded in another way.
Know your out-of-network benefits! Sometimes you may be referred to specialists who may not be in your insurance company's network␣ What is the percentage and how does your out-of- network benefit work with your deductible? Do any of the company's in -network doctors offer the same care as the out-of-network specialist to whom you have been referred? If not, most policies have provisions to cover out-of-network providers when no in-network doctor has the same capability.
Try to connect all of your doctors, so that each knows about your health in relation to the other physicians providing your care. If you can start a group dialogue among your doctors, your care will be better.
The Malformation of Health Care (Chapter 25) Copyright Erin Havel 2012
November is National Caregivers Month
In case you missed it...
http://www.whitehouse.gov/the-press-office/2012/11/01/presidential-proclamation-national-family-caregivers-month-2012
President Obama issued a proclamation that November is national caregivers month.
I'm really glad there is beginning to be a larger recognition of the people that so many of us are grateful for every day.
Caregivers are the unsung heros in illness.
The patient is called often times called "strong" "survivor" "amazing"
but these words absolutely also describe the caregivers behind the patient. Caregivers are the ones who hold everything together when the patient doesn't have anything left. Caregivers are often the ones who make sure the patient is getting to their appointments, fighting with insurance, managing the household. Caregivers are the ones who put on a brave face and offer encouragement and support.
Caregivers are simply the greatest advocates patients have during a battle.
I for one, want to take this moment to say THANK YOU!!! to all the amazing/supportive/unstoppable caregivers in our lives.
http://www.whitehouse.gov/the-press-office/2012/11/01/presidential-proclamation-national-family-caregivers-month-2012
President Obama issued a proclamation that November is national caregivers month.
I'm really glad there is beginning to be a larger recognition of the people that so many of us are grateful for every day.
Caregivers are the unsung heros in illness.
The patient is called often times called "strong" "survivor" "amazing"
but these words absolutely also describe the caregivers behind the patient. Caregivers are the ones who hold everything together when the patient doesn't have anything left. Caregivers are often the ones who make sure the patient is getting to their appointments, fighting with insurance, managing the household. Caregivers are the ones who put on a brave face and offer encouragement and support.
Caregivers are simply the greatest advocates patients have during a battle.
I for one, want to take this moment to say THANK YOU!!! to all the amazing/supportive/unstoppable caregivers in our lives.
Subscribe to:
Posts (Atom)